More info from another doctor

Last Thursday I arrived at oncology Porter Ranch for my infusion and was told Dr. Glaspy was not in but, he had a stand-in; Dr. Berkowitz. Very nice and easy to talk to. He engaged me in conversation for as long as I had something to say - I love him! Lol. We talked about my hair; what I have now is baby hair. New hair - more course and thick- is coming but, I'm still early on all of this, he yells me. I told him I was jogging and we talked about compression clothing and shoes :) I told him that it was so difficult at first but, that I was doing much better and my fatigue and joint pain is lessening. He confirmed that this type of exercise is the best defense for me. He, also, confirmed that this Cancer isn't coming back! Then, he asked who didy surgery....he knows Dr. Schmit! We talked about him for a while, too! That made me so happy that he knows him as well as he does and they refer patients to each other. He suggested acupuncture for the hot flashes and mood swings if they become unmanageable. I like that! 

I've been hiking and jogging every chance I get. I'm getting stronger every day! Today, I jogged without my knee compression bands and it was fine! My best run to date, in fact!

I think the nails that are going to fall off have done so and today I had acrylics put on at Ocean nail salon in Stevenson Ranch. Kim did a WONDERFUL and BEAUTIFUL job!!! 

My Saturn is, finally, on the road!!! Joe did all the things to finish getting it road ready after the mechanic was done with it. Then, took it over and replaced two of the tires. :) that was very nice of him! Things between us are very good right now and I am enjoying it while it is so.

I'm applying for a promotion job at the VA- I must be crazy.

I'm thinking about switching schools to finish my masters. The last instructor was so horrible I want to not go back to Ashford. 

I'm hoping I can return to work full time after Christmas.

Stronger

The jogging is going well. Every day I don't work I can get about 4.9 miles in. Some days are harder than others but it's usually because I started too late in the day or didn't get enough sleep. I bought long pants and compression shirt for the cool weather. I feel like I jiggle too much in these pants, though. 

I am adding hiking to my exercise routine.    Nat and I hiked the Towsley Canyon (one of the trails) while I was in chemo and it was slow going but it's a little easier now. 

Lenny went with me on Veterans Day. I haven't been treated so kindly in years. He helped me up the rough spots and when I stopped to catch my breath he told me he had to catch his, too-he didn't but he was being encouraging. He was concerned that I was walking too close to the edge as we came down. Nice conversation - NORMAL conversation! I have not had a normal, pleasant conversation in years. I don't expect Lenny to know how much these things he does mean to me but, they mean so much. Kindness and caring- the cornerstones to recovery. 

Natalia and I hiked the following day after work/school and we nearly made it to the top but the sun was setting so we came down. It turned dark before we were half-way down and I slid down on my ass in a couple places but, when we could, we hugged each other as we walked. When we couldn't hug, we held hands. She was scared and she knew I would protect her and get her to the car safely. I'll cherish that memory forever - both hiking memories.

Yesterday, before my jog, I tried to have a conversation with Joe and it went south quickly. Then, it turned ugly as he said he couldn't be affectionate because of my fat; he doesn't know how to be with someone fat. And it didn't get better after that. I don't know why I try. I hate living like this. We can't talk like normal people. I went jogging after our discussion and came home and cleared some vines from the side fence. Still upset, I walked to Towsley Canyon and walked a different trail. I cried most of the two miles up. So much ending in my life. Moving into another stage and it makes me sad. Joe has made me very sad. My hair isn't growing back fast enough. My nails falling off makes me sad. My life makes me sad and so, I cried. I cried uncontrollably at one point but I kept moving. At the turn-around I stopped crying. I came home and showered and went to bed. The depression is challenging right now and I don't know what to do. I start therapy at some point but I don't remember the date. 

I want this to all be a memory, already- all of it.

STUFF...

Sometimes there is no better way to say it...stuff:

     I DID get to the garage, after all. What an intimidating task! But, I played Madonna's "Die Another Day" mix on the CD player and went to work. I managed to re-pack, stack, move, remove, unpack, throw away, and sort for 3 hours. I needed help getting the head board and foot board up the steps (I'm going to paint them white and use them in my room). I asked Joe to help with the side rails as spiders had taken up residence all around. He obliged without a complaint. He looked all around the garage for the other side rail and, nothing! Hopefully, it's in storage.
     I felt fine at the end of the day. A little sore in my lower back - I have had trouble with this part of my back since starting chemo and, now, with the Tamoxifen, it's, likely, not going away.

     It dawned on me, yesterday, that I should have been keeping a written account of my weight and blood pressure. My weight dropped steadily from my first visit to Dr. Schmit through my first 2 rounds of chemo. Then, it slowed and steadied until the first run to the emergency room, at which, time my weight plummeted 10 pounds. Throughout the other 4 rounds of the cocktail chemo my weight bounced around those last 10 pounds. Since starting my treatment of Herceptin, only, with the Tamoxifen pill my weight has held steady; 20 pounds down from pre-cancer body. I am 182 pounds. I have had battled Hashimotos Hypothyroidism for about 14 years and struggled to control my weight. I lost weight, in the past, by eating, almost, nothing and exercising 3 to 4 hours a day. I could maintain that plan because I was living, alone, with Natalia and working for the newspaper, freelance. I dropped her off at school and went for a brisk 2-hour walk along the waterfront in Washington, North Carolina. I picked her up from school and worked out on the Total Gym for 2 hours. We ate salmon for dinner and fruit as a snack. I cut out anything and everything with sugar - that eliminated much! I tried adding palates after dinner and fell asleep positioning for the plank maneuver. I laugh at that memory. But, with all of that I was the weight I am now. When Natalia and I moved here I started jogging around Lake Balboa every day after dropping her off at school. I dropped another 10 pounds. Then, I went back to school - Pierce College. My exercising took a back seat and, by then, Joe was driving me crazy with criticism. He has always told me I am beautiful but, he was, excessively, pointing out every flaw, real or imagined. Poking, pinching and constantly obsessing about my weight, "when am I gonna see the girl I met in 1979?", he would say. It got to be too much. I shut down, all together. I, guess, I felt if what I'm doing isn't enough why am I working so hard? Needless to say I regained the weight. When I finished school (2, great, years at Pierce and 2 online with Ashford University) I went to work at the VA as Non Paid Work Experience through Voc Rehab (Part of the Chapter 31 that I went to school under). I, almost, didn't take it because I felt so horrible about how I looked. And I did look bad! I felt so bad about myself because of being so ripped apart emotionally that it began to turn my appearance into something terrible. I didn't have any clothes to wear to work except for 2 outfits I managed to buy for myself when I worked as an Inspector at the voting polls. Otherwise, I hadn't bought anything for myself in years - nothing that I had from my newspaper days fit. I was embarrassed but, I went to work. No make-up, my hair - oh my hair! It was down to my waist and I asked Natalia to cut it to my shoulders...she did and then I chopped at the bangs and sides..it was sooooo horrible! But, I went as a NPWE, getting paid a stipend, only, and hoped I could go unnoticed.
     Anyway, my weight is an issue! After all that blabbering, I just did!
     My blood pressure has been high and low. With weight gain it's higher. Working at the VA, it is higher. When I go to a doctor appointment on a day that I don't go to work my blood pressure is, usually, around 125/76. It's been as low as 113/76. On a working day it's, usually, 154/84. The entire time I was off of work it was, consistently, 120-130. When it gets to the 154 range I notice my heart beats laboriously and I have palpitations.
     My feet and ankles swell unbelievable at times. Dr. Glaspy told me they would do that for another few months.
     The hot flashes seem to have amped up a bit with the start of Tamoxifen. I'm less embarrassed by it at work, now. Everyone around me is aware of what I go through. So, when I whip out my hand fan or turn the electric fan on high, everyone knows why.
     I opened the latest issue of US magazine and there is a two-page product plug, 'USbeauty' and all of the items purchased support breast cancer research, mammograms, etc. I love finding things like this! Some of the products look like they have been developed for breast cancer patients, as well; mineral hand cream by Ahava, dry shampoo by Bumble and Bumble (great for those SAVI radiation days if you can't make it to a salon), wrinkle smoothing day crème by Elemis, Jergens cherry-scented lotion in a bottle that last for months (during chemo) and Avon's evening gel-cream packs. I want to try them all. Then, there are the products that, simply, support the cause but don't, really, fit the cancer patient; tweezers (most eyebrows fall out) and nail polish (we have to keep our nails free of polish during chemo to monitor discoloration, etc.). What, really, caught my eye is the rose-gold plated charm on a Swarovski pearl bracelet: refillable fig fragrance beads. Beautiful and reasonably priced at $85. I'll put that on my Christmas wish list. :)
    Church today! I think it's the day we eat, too! I didn't make anything - oh no! I forgot!! Yikes, let me see if there's something in the fridge from the plane I can take.
     Tonight is Universal's Halloween Horror Nights! Can't wait for the Walking Dead maze!!!!!!!! I have wanted to go to this for years!!!! Woo Hoo!!
    

The First Run

SLOW AND STEADY

I went out on my first run today. I wouldn't call it a 'run' as much as a slow jog. I didn't stretch or prepare myself in any special way other than to try putting on the knee sleeves. Fail. The knee sleeve is a great idea but it felt too tight around my thigh so, I opted for nothing. I put on a pair of heavy exercise pants - they fit tight (so no jiggle!), exercise bra and t-shirt. I plugged my ears with earbuds and prepared the outdated iPod with music. I decided months ago, when I was contemplating marathon training, that Eminem would be my music to train by. So, on the ready, was Marshall Mathers LP 2. I didn't have a plan or set path so, I just started jogging once I arrived at Calgrove. I, immediately, felt a burning in my thighs and in my lungs. My breathing was labored and I felt weak. When I turned into a residential area off of Wylie Canyon I started crying. I kept jogging, but I was crying. I swiped at my tears, at first, but, after a while I just let the tears run down my face. My body was hurting and weak. My slow jog was, almost, too much for it. I kept going. I thought about the marathon I promised Adam. I thought about cancer. I thought about my body being so weak. In my ear was "Stronger Than I was". I don't know if I was sobbing loudly or not. I had the music volume up loud enough that I couldn't hear myself. I would stop crying for a while and then cry some more. For 2 miles I cried off and on. I jogged, without stop, for a little over 1 mile. Then, I alternated walking and jogging until I was back home.

After the jog I took some vitamins, drank an Ensure and headed to the Sport Chalet where I bought two types of knee braces. Then, off to CVS for ibuprofen. I wanted to come home and work on the garage but, as I type I am feeling tired. The temperature is going to be around 100 degrees today - maybe higher. When I went out to jog it was, still, cool but by 9:30 it was hot.

I need to chop some greens and make a big batch of green drink for the coming week. The batch from last week didn't last through Friday.

Dr. Glaspy signed a note that I should work a maximum of 24 hours instead of the 40 I have been working. I, really, need the break. I am exhausted all of the time. I hit snooze 3 or 4 times in the morning and find myself needing a nap by the time I arrive to work at 0600. I struggle to get through the work day and have fallen behind in my classwork. I haven't contributed to cleaning house or doing dishes in weeks. I haven't ironed clothes in weeks. My room is in disarray. I, just, don't have energy or strength. I would like to take a leave of absence from work until all of chemo is finished but, I can't afford it. Joe has yet to say to me "you should take off, don't worry, I'll help with the doctor bills and other bills you are burdened with. Your health is more important". Instead, I get "I'm tired, too". Go figure.



A piece of my jog.